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Your Data Matters

Your Data Matters

to the NHS

Information about your health and care helps

us to improve your individual care, speed up

diagnosis, plan your local services and research

new treatments.

In May 2018, the strict rules about how this data can and

cannot be used were strengthened. The NHS is committed

to keeping patient information safe and always being clear

about how it is used.

You can choose whether your confidential patient information

is used for research and planning.

To find out more visit: nhs.uk/your-nhs-data-matters

For more information about your data rights please visit

the Your Data Matters campaign at ico.org.uk

You can choose whether your confidential patient information

is used for research and planning.

How your data is used

Your health and care information is used to

improve your individual care. It is also used

to help us research new treatments, decide

where to put GP clinics and plan for the

number of doctors and nurses in your local

hospital. Wherever possible we try to use

data that does not identify you, but

sometimes it is necessary to use your

confidential patient information.

What is confidential patient

information?

Confidential patient information identifies

you and says something about your health,

care or treatment. You would expect this

information to be kept private. Information

that only identifies you, like your name and

address, is not considered confidential

patient information and may still be used:

for example, to contact you if your GP

practice is merging with another.

Who can use your confidential patient

information for research and planning?

It is used by the NHS, local authorities,

university and hospital researchers, medical

colleges and pharmaceutical companies

researching new treatments.

Making your data opt-out choice

You can choose to opt out of sharing your

confidential patient information for research

and planning. There may still be times when

your confidential patient information is

used: for example, during an epidemic

where there might be a risk to you or to

other people’s health. You can also still

consent to take part in a specific

research project.

Will choosing this opt-out affect your

care and treatment?

No, your confidential patient information

will still be used for your individual care.

Choosing to opt out will not affect your

care and treatment. You will still be invited

for screening services, such as screenings

for bowel cancer.

What should you do next?

You do not need to do anything if you are

happy about how your confidential patient

information is used.

If you do not want your confidential

patient information to be used for

research and planning, you can choose

to opt out securely online or through

a telephone service.

You can change your choice at any time - To find out more or to make your choice visit nhs.uk/your-nhs-data-matters or call 0300 303 5678your choice visit nhs.uk/your-nhs-data-matters

or call 0300 303 5678



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